The ALS Ice Bucket Challenge is a viral trend that has been
sweeping the world for the past few months, and I’ve heard that the challenge
has raised millions of dollars for ALS research and treatment, but I haven’t
heard much about what ALS actually is.
Originally, after scrolling through my Facebook feed over
the summer, I saw quite a few of my Facebook Friends posting videos of themselves
getting drenched in ice water. All of these posts had similar captions; “This
is my ALS Ice Bucket Challenge, and I was nominated by soandso and I nominate
thisperson”. Honestly, I think I could’ve gone through this social media craze
without ever finding out what ALS is!
Fortunately, when my mom and I were nominated, I sat down
and did some research about ALS. I learned that ALS, Amyotrophic Lateral
Scleroses, also referred to as Lou Gehrig’s disease, is a progressive neurodegenerative
disease that affects the nerve cells in the brain and spinal cord. The degeneration
of motor neurons stops the brain from having control over muscles in the body;
this will eventually lead to paralysis and then death.
A few days after doing my Ice Bucket Challenge I was talking
to a woman who had just recently done her own challenge, and she said that even
after doing the challenge she didn’t know what ALS was. This got me thinking,
do people doing the Ice Bucket Challenge know what they’re even doing the
challenge for? So after going through my Facebook feed and searching for more videos
on YouTube, I came to the conclusion that a lot of people don’t post what ALS
is, or how people can help the organization, or encourage their Friends to
raise awareness for ALS.
So my first point in this blog is: how’re we raising awareness
for ALS if we aren’t posting what ALS is?
The Ice Bucket
Challenge, in my opinion, has turned into more of a trend then a way to raise
awareness. More people are looking up funny Ice Bucket Challenges and Ice
Bucket Challenge bloopers than looking up how to help fund ALS research or
signs and symptoms of ALS. Now, I'm not writing this blog post to say that
everybody that has posted their Ice Bucket Challenge video has gone without describing
what ALS is, or doesn’t support ALS or ALS awareness. I’m writing this to encourage
more people to do what the challenge was made for, which is of course to raise
awareness about ALS, this bring me two my second point in writing this blog…
What’s the best way to support and raise awareness for ALS?
For me the best way to support and raise awareness for ALS was
to write this blog, and to remind the people around me what the Ice Bucket
Challenge is really about. For you it could be any number of things from
raising awareness by posting a description of ALS with your next Ice Bucket Challenge,
to donating money, or to going to the ALS Association website [http://www.alsa.org/]and finding out
how you can help your community.
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